Cheryl, United Kingdom
The feeling that something was not right, unexplained dull ache and pain and tiredness. Pain , constant pain should always be checked, if you just not feeling right, your body is giving you an indication that something is not right and needs to be checked. You know your body better than anyone else, trust your instincts.
Getting the right treatment when needed. Having a rare cancer, has its own unique traits from getting the correct diagnosis to recognition. Fighting to get it recognised by professionals, insurance companies and employers are additional battles you do not need at a vulnerable time when you cannot give your all to fighting for what’s right.
My fantastic family, my wonderful friends and support groups for Cancer and Appendix cancer survivors. McMillan, Maggies and Pseudomyxoma Survivor.
Mixed, but I do hope this improves with more knowledge for rare cancers and multiple symptoms experienced.
Be your own advocate, say no when things are not right, keep asking questions, be inquisitive, and even though it’s hard some days keep fighting. Seek help for your mental well being and ways in which to cope when experiencing hard days.