Thank you for sharing your story
You are not alone
Person with a lived experience of cancer

Cheryl, United Kingdom

How did it start?

The feeling that something was not right, unexplained dull ache and pain and tiredness. Pain , constant pain should always be checked, if you just not feeling right, your body is giving you an indication that something is not right and needs to be checked. You know your body better than anyone else, trust your instincts.

What was the biggest challenge(s) in your experience with cancer?

Getting the right treatment when needed. Having a rare cancer, has its own unique traits from getting the correct diagnosis to recognition. Fighting to get it recognised by professionals, insurance companies and employers are additional battles you do not need at a vulnerable time when you cannot give your all to fighting for what’s right.

What helped you most?

My fantastic family, my wonderful friends and support groups for Cancer and Appendix cancer survivors. McMillan, Maggies and Pseudomyxoma Survivor.

What was your experience of the healthcare system?

Mixed, but I do hope this improves with more knowledge for rare cancers and multiple symptoms experienced.

What is your message of hope or words of advice?

Be your own advocate, say no when things are not right, keep asking questions, be inquisitive, and even though it’s hard some days keep fighting. Seek help for your mental well being and ways in which to cope when experiencing hard days.

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