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You are not alone
Caregiver, family or friend

Fernanda, Brazil

How did it start?

My father was an athlete in peak condition, so his only symptom was a dry cough for several months. Doctors misdiagnosed it as pneumonia until it was too late. I was 17 and alone with him when we received the diagnosis. June 26th marks 18 years since he passed, a loss defined by a silent onset in a healthy body.

What was the biggest challenge(s) in your experience?

The biggest challenge was the sudden shift from a trajectory of peak professional success to terminal crisis management. My father was a self-made entrepreneur who rose from poverty in Brazil through merit and readiness. He passed away at the height of his career, yet he maintained total operational control until the end. After the diagnosis, he survived for 18 months, remaining active and managing his own transition. He strategically organized his estate and affairs before passing, ensuring stability for those he left behind. His resilience was not just emotional; it was a final act of leadership.

What helped you most?

What helped most was the focus on legacy and the observation of clinical progress over time. I maintain my father’s impact by consistently applying his examples of leadership and resilience in my own life; in a practical sense, his influence remains an active operational guide. Additionally, witnessing recent victories against cancer within my family, specifically with my sister and a close cousin, has provided a necessary contrast. Seeing how modern medical evolution has changed the outcomes for my generation, compared to 18 years ago, reinforces the value of scientific advancement and early intervention.

What was your experience of the healthcare system?

Our experience with the healthcare system was defined by high-tier private access. Because my father was at his financial peak, we utilized the best oncological centers in Brazil, specifically in Florianópolis and São Paulo. We exhausted all available financial resources, and in that regard, the medical attention and inclusion in decision-making were optimal. However, the limitation wasn't the system's quality, but the era's technology. In contrast, my sister’s recent successful treatment in Florianópolis, supported by her corporate health insurance, demonstrates how much the standard of care and success rates have evolved. The system worked as intended, but 18 years ago, the science simply hadn't reached the level of precision we have today.

What is your message of hope or words of advice?

My advice is based on the principle of legacy: a person remains functionally alive as long as their name and examples are cited and applied. If you can, celebrate their life through action and continuity. From a clinical perspective, my message to both caregivers and the healthcare system is centered on vigilance. Attention to minor physiological signs is the only variable we can control. Having lost a healthy father to a late diagnosis, I now prioritize rigorous screening. Early discovery is not just a preference; it is the definitive boundary between a terminal outcome and a manageable condition. Awareness is the most effective tool for compassion.

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