Jovanna, Canada

My name is Jovanna Sauro, and I’m an Adolescent and Young Adult blood cancer survivor.

In June 2020, my life forever changed when I was diagnosed with stage 2 Hodgkin’s lymphoma at 32 years old. I had a large lump under the skin in my left armpit, along with several smaller lumps on both sides of my neck. None of them were painful. I didn’t have a fever, rash, or night sweats, which made it harder to recognize that something serious was going on. What I thought were swollen lymph nodes turned out to be something far more serious. After endless tests, I heard the words no one ever wants to hear…you have cancer.

I underwent four months of intensive chemotherapy and had to deal with numerous side effects like chemo brain, body discomfort, forgetfulness, hair loss, and exhaustion. One of the most isolating experiences during this time was not being able to have my husband Gabriel by my side at my chemo sessions due to the COVID restrictions. Despite the physical and emotional toll, I tried to stay positive, chatting with nurses and other patients whenever I could.

In August 2020, I was admitted to the hospital for several days with febrile neutropenia—a potentially life-threatening condition where the number of white blood cells drops dangerously low. That experience reminded me how delicate life can be, but it also reminded me how strong I am.

In September 2020, while still undergoing chemo, I began my Master of Education in Health Education and Active Living at SFU. It was incredibly challenging but also healing. I did readings during chemo sessions and completed assignments on my good days, despite the struggle with “chemo brain.” I successfully completed my first course and exceeded by own expectations by achieving a A+! The program gave me the opportunity to write about my cancer journey, and it was incredibly healing. 

In December 2020, I received the amazing news that I was in the clear! After two years of follow-up appointments and routine blood work, I officially graduated from BC Cancer in January 2023. This journey was more than a fight against illness – it changed me. It gave me a new perspective on life and deepened my passion for health education and advocacy. 

In January 2023, I was awarded the Simon Fraser University (SFU) Staff Achievement Award in the Personal Achievement category. The award recognized not only my academic and professional accomplishments, but the courage, resilience, and determination it took to navigate cancer, return to work, and complete my master’s degree. 

But my story didn’t end with survivorship. I wanted to give back—to use my journey to make a difference for others.

Today, I serve as an Ambassador for the Leukemia & Lymphoma Society of Canada, where I advocate for equitable access to treatments and support for blood cancer patients across our country. I am also an Adolescent and Young Adult Peer Navigator with the University Health Network’s Princess Margaret Cancer Centre, supporting patients aged 15 to 39 as they navigate their own cancer experiences. I also serve as a Patient Partner with the University Health Network in a research project on early palliative care for patients with relapsed lymphoma and their caregivers. In this role, I share my perspective to ensure that the patient voice is central in shaping better care.

Most recently, I had the privilege of contributing my lived experience to Canada’s Drug Agency (CDA). I provided a presentation to the Formulary Management Expert Committee (FMEC) on brentuximab vedotin as part of the BrECADD regimen for newly diagnosed Hodgkin lymphoma, which would provide patients with an additional treatment option. Drawing from my personal journey receiving ABVD treatment, I highlighted both treatment and survivorship challenges, including physical side effects, cognitive impacts, and the social and financial implications of navigating cancer as a young adult. The committee directly referenced my presentation during deliberations, demonstrating how patient insight helps inform drug funding recommendations. This experience underscores the importance of hearing directly from individuals with lived experience to ensure healthcare decisions reflect real-world patient needs.

I have also spoken publicly about my cancer journey at community events—including as a Guest Speaker at the 2024 and 2025 Langley City Terry Fox Run and at SFU Relay for Life events in 2023, 2024, and 2025—to help build awareness, education, and community connection around AYA cancer.