Person with a lived experience of cancer

Moonoon, United Kingdom

How did it start?

Hello so my name is Moonii and this is my story and so how did you get your diagnosis? I got my diagnosis from a blood test and after falling very unwell I was in Dubai for one month and as my business resides there and yes came back to the UK very unwell had lost sight to my right eye very weak very pale bruising and couldn't walk 2 meters and couldn't sleep and I couldn't eat so that's when I lost sight of my right eye I went into hospital and their the blood test confirmed everything. Yes it was a devastating news it was acute myeloid leukemia a type of aggressive blood cancer, my white blood cells and red blood cells literally swap places. My background is of so I was born in the UK Stoke-on-Trent and my mother and father are from Bangladesh originally and yeah it was just a shock to the system when I got first diagnosed and yeah I never ever thought that cancer would get me or get anyone in my family because no one, there's no previous history of cancer and my family and yeah it was a crazy crazy journey but here I am now to tell my story.

What was the biggest challenge(s) in your experience with cancer?

The biggest challenges from my current diagnosis was it was a crazy start because I was only given to to two weeks to live if I didn't take any treatment I made the decision to take the treatment and therefore I was put into a medical induced coma and just to save my organs that were failing at the time and so yes he had a major effect on me. Furthermore to this the emotional stress and yes I was a businessman I had restaurants and takeaways in the local area of Stoke-on-Trent however yeah to leave them in the hands of my little brother on my business partner. First of all the physical was that I lost almost 70% of my body weight and while being in critical care and the coma and I was a bodybuilder I was a strength trainer I used to go gym five to six times a week I used to swim four times a week on football was three four times a week minimum and so I was football crazy and now I can't do any of that how many recovery from a blood So the physical element I lost everything that I once had or my muscle disappeared without that was saved me in the end I needed all that muscle in fact and also the emotional toll in my current vehicle words to this and but it literally took everything out to me and I was strong throughout my journey through treatment through critical care through almost 10 rounds of chemotherapy and yeah it was a crazy crazy unexpected thing to happen in my life the emotional damage that I had done I can't put words to it but yeah one thing I have accepted is that this was meant for me and no one else this was written for me and yes I am still here post transplant 20 months and yes my sister saved my life with her being a blood match so I had her baby stem cells her bone marrow and now I'm here to tell the tail. The financial stresses were extreme I had three businesses in total and unfortunately while only treatment I could not manage them I did manage to hold on to him for one year however the losses were too hefty and from that I had to sell my shares at a loss I lost all my businesses I lost everything that I work so hard for my whole life and the great thing is health is brought me back to the right path and now I love why I do I'm doing a lot more charity work I started my own charity and I love why I do now but I did lose everything that I worked for and I had to start again and what that's sometimes what life gives you. To sum it up I literally lost the moon I built but the thing is that's built me even stronger now yes I lost my businesses yes I lost my hair yes I lost all the muscles yes I lost the confidence but that has not changed me that has only developed me and now I am a champion to as many cancer charities there is and I am here to make sure my voice is heard because people especially from my demographic don't know what cancer actually does to people and I want to use my voice and my platform to spread as much awareness as I can.

What helped you most?

One person I would love to actually mention is my older sister she was the her name is Yasmin and she was there every day on my critical care praying for me that would make it through because the probability of me making it was very low to a point where my father actually made funeral arrangements so yes my sister Yasmin my mother and my friends as well so I had a great support network and yeah it was it was a struggle and it was a fight but they were there for me mentally emotionally and yeah without them I wanted to have been a strong as I was.

What was your experience of the healthcare system?

This is probably my first time properly properly losing the NHS and I am so grateful I appreciate the NHS so much they were one part of my journey of cancer and also my journey of saving my life. From the doctors from the consultants from the nurses from the dietitians from the cleaners every single Norton bolt that actually makes the NHS work I have a debt to them they actually were part of saving my life and I cannot champion the NHS much more because people across the world who have to pay for healthcare if I had to pay for healthcare would not be here so and I do I did pay my taxes I was always a taxpayer and yes because of that this system has helped see my life and I never knew much about the health care system but I've learned a lot about medicine and medication and yeah here I am and still alive to let everyone know that my experience with the NHS was phenomenal

What is your message of hope or words of advice?

You are stronger than you feel, even on the days you feel broken. Cancer is terrifying, unfair, and exhausting but it does not define you. You are still you full of worth, dignity, faith, love, and purpose. There will be hard days, days of fear, pain, and uncertainty and on those days, it’s okay to cry, to rest, to feel overwhelmed. That doesn’t make you weak. It makes you human. Take it one day at a time, One breath at a time, One small victory at a time and you will make it. Every appointment attended, every treatment endured, every moment you keep going that is courage and determination Lean on the people who love you. Let others carry you when you feel tired. And never forget: you are not alone never alone not in this fight, not in your fear, not in your hope. If faith speaks to you: May God grant you strength, patience, healing, and peace. May every hardship be replaced with ease, and every tear be counted as a reward. And most importantly hold onto hope. Hope is powerful. Hope saves lives.

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