Nuestras demandas

Hacemos un llamamiento a los gobiernos, organizaciones e instituciones con el poder de hacer realidad la atención centrada en la persona en oncología para que actúen con urgencia.

Los servicios de salud que priorizan al individuo en lugar de la enfermedad no son un concepto nuevo. Se reconoce ampliamente como un medio importante y eficaz para mejorar los resultados de salud y la experiencia de las personas que viven con cáncer.

Sin embargo, este enfoque probado casi nunca se implementa debido a varias barreras, incluida la falta de voluntad política, presiones financieras, limitaciones de recursos, formación y educación insuficientes, resistencia al cambio y desigualdades sistémicas. 

Debemos superar estas barreras para abrazar una revolución centrada en la persona dentro de la atención del cáncer. No hay una sola forma de hacerlo: así como la experiencia de cada persona con el cáncer es única, los países y los sistemas de salud también lo son. No obstante, existen ciertas recomendaciones que pueden conducir a un cambio significativo y duradero en todas partes. 

How do we achieve people-centred care?

People-centred cancer care is a profound and multifaceted transformation.

HERE ARE A FEW ACTIONABLE CHANGES CAN MAKE A REAL DIFFERENCE:

Principle 1: Engage people and communities

The meaningful engagement of people living with cancer in shaping services, informing care practices, and guiding health policy is at the core of creating a health system that is compassionate, humanising and empowering. A system cannot respond to the needs of people affected by cancer if it is not created in collaboration with them.

People affected by cancer, caregivers, and families have valuable skillsets, experience, and expertise. This includes the groups and organisations that represent them, such as patient advocacy groups, support networks, faith-based or cultural groups, and local leaders. The insights of these groups and individuals can help identify systemic challenges and gaps and highlight opportunities for improvement.

But until now this participation has been limited: People with lived experience are too often seen as passive recipients of care or caregivers, rather than as active partners in decisions about their treatment and care.

A shift is needed from traditional top–down approaches in which the design of interventions and strategies excludes individuals with lived experience, toward inclusive, bottom-up approaches co-created with a diversity of views. People with lived experience need to be involved in the creation of policies, programmes, and services at the local, national, regional and global levels.

EXAMPLES:

  • Cancer Coalition Philippines, a leading civil society coalition, has been instrumental in driving policy reforms and fostering partnerships for cervical cancer elimination. For example playing a key role in securing the National Integrated Cancer Control Plan in 2018 and influencing policy as a member of the National Integrated Cancer Control Council (NICCA). The coalition actively identifies and engages ‘legislative champions’ – members of Congress and Government with lived experience of cancer as patients, survivors, family members or caregivers – who have been instrumental in securing government support for these initiatives.  
  • NHS England uses insight and feedback (surveys, complaints, feedback, compliments) from people with lived experiences of cancer to improve co-design cancer services and share learnings across England.  
  • In Canada, patient involvement is mandatory in research that informs the development of health policies and improves the health care system, to ensure questions and results are relevant.

Principle 2: Reorienting the model of care

Reorienting cancer care to a people-centred approach starts with understanding what individuals value and the conditions in which they live and make health choices across every stage of the cancer continuum – from prevention, screening, and diagnosis to treatment, palliative care, and survivorship. Cancer care should be holistic, not siloed around a single diagnosis. It should be embedded within a broader framework of responsive health services that consider the individual’s full range of needs. This includes screening for other cancers, managing co-morbidities and risk factors, and even addressing the health needs of family members who may be present—such as offering childhood vaccinations. By looking beyond the immediate condition or symptoms, integrated care can better support people in the context of their lives, not just their illnesses.

Effective prevention and early detection strategies must also be designed with an understanding of the social, economic, and environmental conditions that shape people’s knowledge, awareness, and health-seeking behaviours – including education, employment, housing, and access to healthy products.  

At the point of diagnosis and treatment, people must be active participants in their care. A people-centred approach equips individuals with clear, accessible information so they can weigh options, manage their care, and make decisions that align with their values, goals, and lifestyles. It’s not about asking, “What’s the matter with you?” but rather, “What matters to you?”

Health literacy – the ability to find, understand, and use health information – is a cornerstone of this model. When people understand their diagnosis, treatment options, and care plan, they are more likely to participate actively, follow medical advice, and experience better health outcomes. Health systems must proactively ensure that information is tailored, culturally appropriate, and easy to navigate. This includes verbal communication, written materials, digital tools, and translation where needed.

Throughout treatment and follow-up, care must be continuous, coordinated, and compassionate. Multidisciplinary teams (radiotherapy, chemotherapy, surgeons, pathologists, alongside nurses, social workers, community health workers and so on) should collaborate consistently across services and settings to manage not only clinical symptoms and side effects but also emotional, psychological, and practical needs.  

Supportive care should consider the long-term physical, mental, and social challenges throughout an individual’s cancer journey. Palliative care should address the need for dignity, comfort, and support for both patients and their families.  

EXAMPLE:  

  • In Cameroon, an integrated mother-to-child approach combining cervical cancer screening for women with HPV vaccination for their daughters significantly improved uptake and community acceptance of both services. When HPV vaccination was offered alongside cervical cancer screening, it builds trust, reduces hesitancy, and encourages intergenerational learning about prevention.  

Principle 3: Equity, inclusion and transparency in governance

Decision-making must prioritise equity and inclusion. Services should be tailored to diverse populations and aim to remove barriers related to geography, language, income, disability, or stigma. Cancer control strategies should be shaped with active involvement of civil society organisations (CSOs) and people with lived experience, including marginalised groups such as indigenous peoples, migrants, and rural communities, to help ensure that services are relevant and accessible. This includes allowing for different ways of delivering care, such as reaching out-of-school girls for HPV vaccination or approving self-sampling methods for cervical cancer screening, which can help people who can’t easily get to health facilities.

Transparency in how decisions are made and how well the system performs is key. Accountability should be shared across the system so that everyone is responsible for improving cancer care and making it more responsive to people’s needs.

EXAMPLES:  

  • In Aotearoa, New Zealand, efforts to design a lung cancer screening programme that addresses long-standing health inequities are being led by indigenous Māori communities to ensure culturally safe care, equitable access, and participation.
  • The Canadian Partnership Against Cancer (CPAC) engages diverse groups and populations, bringing together governments, health agencies, Indigenous organisations, people living with cancer, caregivers, and community groups to shape cancer strategies. For instance, consultations with First Nations, Inuit, and Métis communities ensures that policies, screening programs, and support services are culturally appropriate, accessible, and responsive to the unique needs of all Canadians. 

Principle 4: Creating the conditions for change

Creating the conditions for change requires action across the entire health system. This includes strong leadership, appropriate and supportive policies and regulations, systems that reward quality and collaboration, and a workforce ready to deliver new models of care. Achieving this transformation takes coordination, co-creation, investment, and shared commitment across sectors and stakeholders.

Governments and institutions must set clear cancer policy goals, communicate a compelling case for change, and allocate sufficient dedicated resources to implement reforms. Strong leadership also means fostering a culture that values data, evaluation, and continuous learning.

Health workers must be supported and trained to work in new, people-centred ways. Cancer care teams should be multidisciplinary, flexible, and responsive to the emotional, cultural, and social needs of people. Staff also require the tools and support to collaborate across institutions and use data to guide care.

Laws and regulations must enable integrated cancer care. This means ensuring that services across the cancer continuum – screening, diagnosis, treatment, supportive and palliative care, and follow-up – are coordinated and connected, so that patients experience seamless, continuous, and people-centred care. Regulations must evolve to reflect the shift toward coordinated, people-centred systems. 

EXAMPLES:  

  • In Rwanda, the government established the first African national policy on palliative care to improve the quality of life of patients, particularly those at advanced stages of HIV/AIDS. This policy was later integrated into the national cancer control plan with a focus on the accessibility and availability of morphine.
  • Some EU Member States (namely France, Belgium, Luxembourg, the Netherlands, Portugal and Romania) adopted national legislative initiatives to recognise a Right to be forgotten (RTBF) for cancer survivors. This prevents insurance companies and financial institutions from requiring disclosure of a past cancer diagnosis after a certain period has passed since the end of treatment. The aim is to reduce discrimination and improve access to financial services such as loans, mortgages, and insurance for people who have had cancer.
  • Mexico has specific legislation granting job-protected care leave to parents whose children (under 16 years old) are diagnosed with cancer. This benefit is designed to support families during critical periods of their child’s treatment and to reduce the risk of treatment abandonment due to parental work obligations.

You can help, your voice matters.


By engaging with your family, friends, and community, you can help raise awareness, offer support, and inspire hope.  

Take action

Más información

El nuevo tema del Día Mundial contra el Cáncer 2025-2027, "Unidos por lo Único", coloca a las personas en el centro de la atención y sus historias en el corazón de la conversación.

Un llamamiento urgente para la atención centrada en la persona.

Tratar a la persona, no solo la enfermedad.

Definiciones de los términos utilizados para el Día Mundial contra el Cáncer.

Comparta su historia personal sobre el cáncer para ayudar a inspirar y apoyar a los demás.

Involúcrate de cualquier manera que puedas.


 

Demanda 1
Empoderar a las personas, familias y comunidades 

Apoyar un modelo de atención del cáncer que permita compartir la toma de decisiones entre individuos, familias y proveedores, fomentar una cultura de cuidado y comunicación, y reconocer que la experiencia vivida de una persona la convierte en experta en sus propias necesidades. Escuchar las opiniones de las comunidades y tener en cuenta sus perspectivas al financiar y brindar atención para el cáncer.

Demanda 2
Reconfigurar los sistemas de salud para una aproximación centrada en la persona dentro de la atención del cáncer 

Desbloquear los beneficios probados de este modelo integrándolo plenamente en las políticas de salud nacionales. Asegurar una financiación adecuada y sostenible para permitir que la atención del cáncer centrada en la persona prospere, financiar el reclutamiento adecuado y demostrar el liderazgo, la visión y la voluntad de innovar que hacen falta para avanzar juntos. 

Demanda 3
Educar y comprometer al personal de salud 

Proporcionar educación y formación de alta calidad, basada en evidencia, para preparar al personal de salud para implementar eficazmente modelos de atención oncológica colaborativos y holísticos. Escuchar activamente al personal de salud y colaborar con él para cambiar mentalidades y obtener su apoyo, al mismo tiempo que se asegura que los profesionales dispongan de los recursos, el tiempo y las condiciones laborales necesarias para escuchar las historias únicas de las personas y colaborar con las familias y comunidades más amplias.

Demanda 4
Evaluar y actualizar las prácticas actuales 

Es común que los proveedores crean que están colocando al individuo en el centro de su atención cuando, en realidad, no lo hacen, y se ha observado que los profesionales recurren a rutinas y procesos más familiares cuando están bajo presión. Incluso si un sistema de salud tiene modelos de atención inclusivos y colaborativos, es necesario tomar medidas para monitorear y evaluar su implementación y su impacto real, actualizar las prácticas si fuera necesario y asegurarse de que el entorno sea propicio para la participación significativa de las personas que viven con cáncer. 

Demanda 5
Concentrarse en el acceso equitativo y en la atención de alta calidad para todos 

Sin un acceso equitativo, no es posible brindar atención que respete las necesidades y valores de un individuo. Reconocer las barreras sistémicas a una atención de alta calidad y abordar las desigualdades profundamente arraigadas en los sistemas de salud son pasos esenciales para ofrecer atención oncológica compasiva y colaborativa. La equidad en salud debe seguir siendo una prioridad en los planes de salud nacionales. 

Puedes ayudar

Estas recomendaciones evolucionarán a medida que nuestra campaña “Unidos por Nuestra Unicidad” se desarrolle. Compartir tu historia única jugará un papel importante en la formulación de nuestro llamamiento final a la acción para los gobiernos, organizaciones e instituciones —para refinarlo y fortalecerlo hasta que se sea imposible ignorarlo.

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